Tuesday, December 20, 2016

Update: Maddox's Heart

Just a little update on Maddox's heart...


We had an appointment with the cardiologist today. It's been about 4 months since we were there.  We have pretty much all good news to share (Praise the Lord!)

Forgive my lack of medical terminology- this is just how I remember the doctor explaining things... :) 

The hole in Maddox's heart is getting more restrictive and there is a "cusp" of tissue that is beginning to form and cover the hole--which is exactly what we want to see.  Dr. Capannari said that at this time we would not expect him to need surgery to repair it!!! There are a few rare situations that can come from any VSD, and although they are not something that would cause an overnight "bad/scary" situation, they are ones that might need fixing in the future.  The doctor explained that although they are rare, they are possible and so that's why they keep an eye on kids with VSDs for awhile.  

The plan right now is for us to go back in 6 months for another echo-cardiogram.  We are hoping that it continues to heal itself completely and there are no other problems along the way.  Drs orders are also to no longer give the Spironolactone and only give Furosemide once daily (instead of twice), and as long as he doesn't start having a hard time breathing/eating, then we can continue the lower dosage.  If he does go backwards as far as breathing/eating, then we can go back to the original dosing.

I am so thankful that we have access to an intelligent, kind, and patient heart doctor.  I feel so confident in his treatment with my precious boy's heart. 

Thanks for all the prayers, they are so beyond appreciated! :)

xox,

Naomi

No comments:

Post a Comment